Page 60 - Harnett Life Winter 2020
P. 60

How to Be an Effective




                 Partner in Your IBD Care









































                                                                                                      Photo courtesy of
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      (Family Features) A lifelong diagnosis like inflammatory bow-  about these issues with a friend or family member before ap-
      el disease (IBD) may feel overwhelming and confusing, but   pointments and consider bringing a loved one to appointments
      by working closely with your health care providers, you can   for support.
      work toward managing the disease and improving your quality
      of life.                                                   Work with Your Health Care Team to Set Goals

      Consider these recommendations from the Crohn’s & Colitis   Goals, or targets, will be different for every patient based on
      Foundation to partner with your health care team to manage   the type of disease, severity, progression and a variety of oth-
      your IBD.                                                  er factors. Finding the right IBD treatment can take time, so
                                                                 it’s important to balance your present priorities. Start by tak-
      Be Upfront About Your Symptoms                             ing an honest approach to your personal preferences regarding
                                                                 medications. Consider if you have time in your schedule for
      Being  honest  with  your  doctor  about  your  symptoms  is  an   lengthy infusions. Or perhaps you prefer administering self-
      important first step in your journey with your IBD diagnosis.   injections. You may have short-term goals, such as attending
      Oftentimes, this starts by sharing exactly what you are expe-  a family wedding in two months, as well as long-term goals
      riencing on a daily or even weekly basis, such as frequency of   related to the future course of your disease, like reducing IBD
      bathroom visits, pain, blood in your stool or fatigue, so your   inflammation  and  achieving  remission,  which  is  considered
      health care team can gain a better understanding of how you   mucosal healing. This process is often called “treat-to-target”
      are feeling. One way to help ensure you’re managing your di-  in the medical community and helps avoid complications and
      agnosis properly is to keep a journal, which offers a simple   minimizes long-term disease risks as much as possible.
      way to track if symptoms have improved or worsened since
      your last visit and help you remember questions that may arise.   This goal-oriented approach to managing IBD is much like set-
      If you find it difficult to discuss certain topics, practice talking   ting a target and trying to hit the bullseye. It can’t be done by
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